June
28,
2015
Los
Angeles
Daily
News
(and
many
other
newspapers
around
the
country)
Annie's
Mailbox
(a
continuation
of
the
Ann
Landers
legacy)
Letter
about
hemochromatosis
and
referring
readers
to
AHS
for
more
info
May
13,
2010
Memorial
Tributes
for
Josephine
Bogie
Thomas
appeared
in:
Mt. Sterling Advocate, Mt. Sterling, Kentucky
Palm Beach Post & Palm Beach Daily News, West Palm Beach & Palm Beach, Florida
Orlando Sentinel, Orlando, Florida
Pittsburgh Post Gazette & Pittsburgh Tribune Review, Pittsburgh, Pennsylvania
May 13, 2009
http://classified.post-gazette.com/details.asp?id=15614807
In Loving Memory
JOSEPHINE BOGIE THOMAS
Mrs. Joseph Burghard Thomas
April 25, 1921/Mt Sterling, Ky to May 13, 1999/Pittsburgh, PA
It has been 10 long years since hereditary hemochromatosis (HH)/iron overload disease stole you from us. Your legacy lives on through
the American Hemochromatosis Society (www.americanhs.org).
You will always be our "Iron Angel".
Remembering and loving you today, and every day, Mom.
Your daughter, Sandra Thomas
Published on 5/13/2009
April
25,
2008:
US
Senate
passes
bill
banning
employers,
insurers
from
discrimination
based
on
DNA
tests
By
JIM
ABRAMS,
AP
Posted:
2008-04-24
WASHINGTON
(AP)
-
People
learning
through
genetic
testing
that
they
might
be
susceptible
to
devastating
diseases
would
not
also
have
to
worry
about
losing
their
jobs
or
their
health
insurance
under
anti-discrimination
legislation
the
U.S.
Senate
passed
Thursday.
The
95-0
Senate
vote
sends
the
Genetic
Information
Nondiscrimination
Act
back
to
the
House
of
Representatives,
which
could
approve
it
early
next
week.
President
George
W.
Bush
supports
the
legislation.
The
bill,
described
by
Sen.
Edward
Kennedy
as
"the
first
major
new
civil
rights
bill
of
the
new
century,"
would
bar
health
insurance
companies
from
using
genetic
information
to
set
premiums
or
determine
enrollment
eligibility.
Similarly,
employers
could
not
use
genetic
information
in
hiring,
firing
or
promotion
decisions.
"For
the
first
time
we
act
to
prevent
discrimination
before
it
has
taken
firm
hold
and
that's
why
this
legislation
is
unique
and
groundbreaking,"
said
Sen.
Olympia
Snowe,
a
Republican
who
sponsored
the
Senate
bill.
There
are
more
than
1,100
genetic
tests
available
today,
she
said,
but
these
are
"absolutely
useless"
if
fear
of
discrimination
discourages
people
from
taking
tests
or
participating
in
clinical
trials.
Genetic
testing
could
lead
to
early,
lifesaving
therapy
for
a
wide
range
of
diseases
with
hereditary
links
such
as
breast
and
prostate
cancer,
diabetes,
heart
disease
and
Parkinson's
disease.
"But
right
now
the
ability
to
realize
those
goals
is
somewhat
limited"
because
of
patients'
fears
that
the
information
will
be
used
against
them,
said
Dr.
David
Herrington,
a
professor
of
cardiology
at
Wake
Forest
University
and
spokesman
on
genetic
issues
for
the
American
Heart
Association.
The
legislation
"will
help
them
both
be
more
willing
to
participate
in
research
and
avail
themselves
of
the
benefits
of
genetic
testing."
Congressional
efforts
to
set
federal
standards
to
protect
people
from
genetic
discrimination
go
back
more
than
a
decade,
to
a
time
when
there
were
only
a
small
number
of
genetic
tests.
But
now,
with
the
mapping
of
the
human
genome
in
2003,
people
have
access
to
far
more
information
about
their
hereditary
disposition
to
such
crippling
afflictions
as
cystic
fibrosis
and
Huntington's
disease.
Bill
sponsors
said
that
has
increased
the
likelihood
that
a
prospective
health
insurance
company
or
employer
will
reject
a
person
because
of
concerns
that
person
will
suffer
a
costly
disease
in
the
future.
The
Senate
passed
genetic
nondiscrimination
bills
on
unanimous
votes
in
2003
and
2005
but
could
not
get
the
House
to
act.
A
year
ago
the
House
approved
a
White
House-backed
bill
on
a
420-3
vote.
Senate
action
on
that
legislation
has
been
slowed
by
Sen.
Tom
Coburn,
a
Republican
who
joined
some
business
groups
in
warning
that
the
bill
could
encourage
a
flood
of
lawsuits.
A
compromise
worked
out
earlier
this
week
tightens
language
to
ensure
there
is
a
"firewall"
between
the
part
dealing
with
health
plans
and
the
section
regarding
employment,
so
as
to
discourage
inappropriate
claims.
It
also
makes
clear
that,
while
individuals
are
protected
from
discrimination
based
on
genetic
predisposition,
insurance
companies
still
have
the
right
to
base
coverage
and
pricing
on
the
actual
presence
of
a
disease.
On
the
Net:
Congress:
http://thomas.loc.gov/
January
8th, 2007 issue of US News & World Report
Magazine available now --AHS
president, Sandra Thomas and the American Hemochromatosis Society are
mentioned in this article by Nancy Shute on genetic testing
and its future.
"...Ever
since a gene that causes the disease was detected in 1996,
doctors have debated widespread screening. Sandra
Thomas, president of the American Hemochromatosis
Society, encourages people who contact her to
use DTC tests and thinks that everyone should be screened
for the disease, which killed her mother."
Do-it-yourself
genetic tests promise to reveal your risk of coming down
with a disease. But do they really deliver?
January
2005--Dr. Crosby was a pioneer in hemochromatosis research.
Obituary - Dr. William
H.
Crosby
Jr.
Dr.
William
H.
Crosby
Jr.,
a
retired
U.S.
Army
colonel
and
a
world-renowned
hematologist,
died
Saturday,
Jan.
15,
2005,
in
Joplin,
Mo.
Born
in
1914
in
Wheeling,
W.Va.,
he
was
the
son
of
W.
Holmes
and
Frances
Crosby,
an
architect
and
a
schoolteacher.
Dr.
Crosby
was
raised
in
Oil
City
and
graduated
from
Oil
City
High
School.
He
received
both
his
A.B.
and
his
M.D.
from
the
University
of
Pennsylvania
(1940)
on
a
full
scholarship
during
the
Depression years.
Anticipating
the
United
States
entry
into
World
War
II,
Dr.
Crosby
served
his
internship
in
1941
at
Walter
Reed
Hospital
in
Washington.
Following
Pearl
Harbor
and
leading
to
his
overseas
deployment,
Dr.
Crosby
served
in
a
number
of
administrative
and
training
positions
at
Army
posts
around
the
country,
including
the
Army's
Medical
Field
Service
School
at
Fort Sam
Houston
in
San
Antonio.
Dr.
Crosby
was
then
assigned
as
regimental
surgeon
of
the
338th
Infantry
Regiment.
As
a
field
surgeon,
he
soon
became
acquainted
with
the
horrors
of
triage,
when
wounded
GIs
overwhelmed
the
Army
doctors
with
their
sheer
numbers
and
often-hopeless
conditions.
His
service
in
Algeria
and
Italy
(1943-1945)
included episodes
in
which
he
distinguished
himself
at
great
personal
risk.
He
was
decorated
with
a
Bronze
Star
Medal
with
two
Oak
Leaf
Clusters,
the
first
of
many
career
awards.
Following
the
completion
of
his
specialization
training
in
Boston
in
the
late
1940s
with
Dr.
William
Damashek,
the
dean
of
American
hematology,
Dr.
Crosby
was
"seconded"
to
the
Royal
Army
Medical
Corps
and
spent
a
year
at
The
Queen
Alexandria
Military
Hospital
in
London.
On
returning
to
Walter
Reed,
his
assignment
was
to
establish
hematology,
the
medical
study
of
the blood,
as
a
specialty
in
the
U.S.
Army.
Five
years
later
he
established
a
second
Army
specialty:
oncology,
the
treatment
of
cancer.
Dr.
Crosby
was
chief
of
hematology
at
Walter
Reed
Army
Institute
of
Research
from
1951-1965.
In
the
winter
of
1952-53,
he
was
sent
to
Korea
to
become
director
of
the
Surgical
Research
Team
in
the
combat
zone.
Following
Korea,
he
returned
to
Walter
Reed
and
established
a
"Sprue
Team"
in
Puerto
Rico
to
study
that
tropical
disease
of
the
small
bowel.
Dr.
Crosby
developed
the
"Crosby
Capsule,"
a
biopsy
pod
which
permitted
small
intestine
tissue
analysis
without
intrusive
surgery,
as
well
as
describing
blood
diseases
like
PK
Deficiency,
known
for
some
time
as
"Crosby
Syndrome."
He
also
began
to
study
the
disease
hemochromatosis,
where
the
body
overloads
itself
with
iron
to
cause
diabetes,
cirrhosis
of
the
liver,
sterility,
arthritis,
heart
failure
and
other
disabilities.
He
maintained
a
lifelong
interest in
this
disease.
In
1965,
after
more
than
25
years
of
service,
he
retired
from
the
Army
to
succeed
his
mentor
at
Tufts-New
England
Medical
Center
in
Boston.
Seven
years
later
he
moved
on
to
Scripps
Clinic
and Research
Foundation
in
San
Diego,
Calif.,
where
he
established
a
training
program
in
hematology-oncology.
In
1979,
he
was
recalled
to
active
duty
by
the
Secretary
of
the
Army.
He
served
another
four
years
at
Walter
Reed
and
retired
again
after
30
years
with
the
Army.
In
1983,
Dr.
Crosby
was
invited
by
the
Veterans
Administration
to
become
one
of
11
professors
in
its
nationwide
Distinguished
Physicians
Program
stationed
in
V.A.
Medical
Centers
throughout
the
country.
He
resigned
from
that
post two
years
later
to
take
up
private
practice
in
Joplin,
where
he
would
spend
his
remaining
years.
Dr.
Crosby
authored
more
than
500
research
papers
and
served
on
the
editorial
boards
of
12
medical
journals.
He
is
a
laureate
of
the
American
College
of
Physicians.
He
also
served
on
many
committees
over the
years
and
was
a
member
of
numerous
medical
organizations.
He
is
survived
by
his
wife,
Ann;
a
brother,
Forrester
"Foss"
Crosby,
of
San
Diego,
Calif.;
a
sister,
Marian
"Krispy"
(Crosby)
Wolke
of
Waynesboro,
Va.;
four
sons
and
their
spouses,
John
and
Karen
Crosby,
of
Chesapeake,
Va.,
Dr.
Seth
and
Tally
Crosby
and
children,
Abram,
Racheal,
Samuel,
Haley
and
Shayna,
of
St.
Louis,
Mo., David
and
Daniela
Crosby
and
children,
Nadine
and
Aaron,
of
Milan,
Italy,
and
Jonathan
and
Susan
(Belau)
Crosby
and
son,
Simon
Holmes,
of
San
Francisco,
Calif.;
two
daughters
and
their
husbands,
Mary
Ann
(Crosby) and
Doug
Blankenship
and
children,
Erik
and
Adam,
of
Damascus,
Md.,
and
Susanna
and
Jon
Perrin
and
children,
Samantha,
Jonas
and
Alexandra,
of
Tigard,
Ore.;
a
granddaughter,
Olivia
Crosby,
of
Rockville,
Md.;
two
stepsons and
their
spouses,
Jeffrey
and
Lynette
Ball
and
children,
Logan,
Landon,
Lane
and
Jordyn,
of
Columbia,
Mo.,
and
Wes
and
Lynn
Ball
and
daughter,
Eli,
of
Neosho,
Mo.;
three
stepdaughters
and
their
spouses,
Lou
Ann and
Hal
Brown
and
children,
Christopher,
Jessica
and
Adam,
of
Stark
City,
Mo.,
Beth
and
Mike
Brock
and
children,
Aaron
and
Kyle,
of
Bella
Vista,
Ark.,
and
Cathy
and
Ron
Brown
and
children,
Sara, April
and
Riley,
of
Stark
City.
He
was
preceded
in
death
by
a
sister,
Margaret
Ann
"Marney"(Crosby)
Wood,
of
Pasadena,
Calif.,
and
a
son,
Holmes
Crosby,
of
Rockville,
Md.
Funeral
ceremonies
were
held
Jan.
17
at
the
United
Hebrew
Congregation
in
Joplin
and
the
Mount
Hope
Cemetery
in
Webb
City,
Mo.
Full
military
honors
were
rendered
by
the
Fort
Leonard
Wood
Honor
Guard.
June 1, 2004
Sandra Thomas, President, American Hemochromatosis Society
Championing
the
Cause
(GEORGE
SKENE/ORLANDO
SENTINEL)
Home-test
kit
aids
early
detection
of
disease
Sandra
Thomas
knows
that,
when
it
comes
to
your
health,
knowledge
is
power.
Had
her
mother
known
early
about
the
blood
disorder
she
inherited,
it
would
have
saved
her
life.
©
Orlando
Sentinel,
June
1,
2004
November
17,
2000
Iron
overload
easily
cured,
often
ignored